A.W. Lymn Shows Support to Those with a Rare Neurological Disorder by Raising Thousands for Charity

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A.W. Lymn, a funeral directors in the East Midlands, has raised £38,377.47 for the charity Alex TLC, which supports people with the rare neurological disorder leukodystrophy. The funds were collected through events like golf days and curry lunches, with the Charity Golf Day alone raising over £23,000. This effort is significant as it supports a cause personally important to Ben Percival, a member of the family business, who has been diagnosed with leukodystrophy.

EDITORIAL INSIGHT: Context, industry insight and market perspectives of this news story

Charitable fundraising remains a central part of community engagement for many family-run businesses, particularly those with longstanding local ties. For companies like A.W. Lymn, such initiatives can serve both to support causes with personal significance and to reinforce connections with the communities they serve.

While the sums raised are notable for a regional operator, the wider impact lies in the support for a rare condition that receives limited public attention. For families affected by leukodystrophy, targeted donations such as these can help sustain specialist charities like Alex TLC, which often rely on community-driven fundraising to maintain their services.

Story Ideas
Human interest

The Role of Personal Experience in Corporate Philanthropy

Investigate how personal experiences, such as Ben Percival's diagnosis, influence corporate philanthropy decisions at A.W. Lymn.

Target audience
national features and health magazines
Story potential
8/10
Economic impact

The Economic Impact of Charity Events in the East Midlands

Explore the economic contributions of A.W. Lymn's charity events in the region, focusing on how local businesses benefit from increased activity and community engagement.

Target audience
regional newspapers and business journals
Story potential
7/10
Press Release

An East Midlands based funeral directors has raised tens of thousands of pounds for a national charity through hosting golf days, curry lunches and multiple generous donations. A.W. Lymn the Family Funeral Service has raised an astonishing total of £38,377.47 for Alex, the Leukodystrophy (Alex TLC) in just five years, with its main fundraiser being a Charity Golf Day, raising more than £23,000 in donations alone.

Alex TLC aims to support individuals who struggle with a rare medical condition – Leukodystrophy.

The main coordinator of these events, Ben Percival, fifth generation of the family business A.W. Lymn and great, great-grandson of founder Arthur William Lymn, has been overwhelmed by the support so far.

He said: “Everyone at A.W. Lymn is so proud of what we have been able to achieve and the money we have raised. Having been diagnosed with Leukodystrophy myself, Alex TLC is a cause my family and the business hold close to our hearts. “We are delighted to continue to support such a great charity and give back to the families that we serve and beyond.”

Alex TLC is a UK charity established in 2005 and remains the only organisation in the country dedicated to providing support, information and advocacy for individuals and families affected by leukodystrophy. Leukodystrophy is a rare genetic condition. Since the charity’s inception, Alex TLC has made a significant impact within the rare disease community, earning international recognition as a centre of excellence for information, support and expertise.

A.W. Lymn, a fifth-generation family funeral directors, has been helping grieving families in the region for over a century. With a high quality of service and value for money, it has been a trusted funeral directors for thousands of families. Operating 36 funeral homes across Nottinghamshire, Derbyshire and most recently Leicestershire, it prides itself on offering a variety of services available at an affordable price to the families it has served since 1907.

Notes to editors

A.W. Lymn was established in 1907 in Nottingham when Arthur William Lymn conducted his first funeral. Today the business is known as A.W. Lymn The Family Funeral Service, operating 36 funeral homes across the Midlands in Nottinghamshire, Derbyshire and one in Leicestershire, as well as Hammerwich Crematorium and Cemetery in Staffordshire, employing more than 175 people across the business. A.W. Lymn prides itself on its family business status – as it is now a fifth-generation family firm – and was awarded the accolade of Family Business of the Year at the 2023 East Midlands Business Masters Awards. The funeral directors continues to place emphasis on its founder’s vision of quality of service, value for money and the meeting of clients’ needs. A.W. Lymn The Family Funeral Service is a member of the National Association of Funeral Directors (NAFD) and invests heavily in the training and qualifications of its staff.

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